Welcome to the Danon Disease Support Network
We are trying to find people who have Danon Disease and would like to connect with others for support and information.
Will you come in and sign our guest book? I have Danon, as does my son and daughter.
We truly want to connect with others concerning this rare genetic disease.
Please go to Guest Book and sign up.
I would like to get enough people together to start a support system.
Danon Research Needs YOUR Help
If you have Danon Disease or have a family member with Danon, PLEASE contact Dr. Matthew Taylor at the University of Colorado.
He needs people to sign up and fill out research participant forms to help with Danon Research study.
The only way to find a cure for this is to participate where there is research....
If you need help with the forms, please email me, firstname.lastname@example.org, and I will put you in contact with Dr. Taylor. The only way to help find a cure is to participate in his study.